Links to Related and Helpful Sites


Chromosome and Genetic

Genetic Information and Patient Services (GAPS)

The National Organization for Rare Disorders (NORD)

The Center for Genetics Education

Genetics Education Center

Rainbows Down Under

 

Loss and Grief

Alliance of Genetic Support Groups

Hannah's Prayer - Christian Infertility, pregnancy and infant loss

Angel Babies - Forever Loved - A site dedicated to all who have lost an infant, either through miscarriage, stillbirth, neonatal loss or SIDS.

M.E.N.D. - Mommies Enduring Neonatal Death - MEND is a Christian not-for-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death and offer a way to share experiences and information through support groups, the bi-monthly newsletter, and our internet web site.

Dealing with Insensitive Remarks - *A must read for everyone* This is actually a copy of a newsletter from the above MEND organization. I think this should be read by both those grieving AND those who don't know this kind of grief. People in general need to be educated on what is appropriate to say to someone experiencing horrific grief. This newsletter is wonderful. I pray everyone will take the time to read these few paragraphs (page 1 and 2).

 

Miscellaneous

Michael Gerard Puharic Fund

Amazing Bible